Saturday, April 12, 2008

Cystic Hygroma, a testimony of Faith

On wednesday January 30, 2008, we went for a routine ultrasound at the Women's and Babie's Hospital, to check on the babies size and due date. We soon learned that are baby was suffering from a very rare birth defect called a Cystic Hygroma. A cystic Hygroma is diagnosed in about 1 in 5,000-10,000 babies. This Fluid filled cyst is filled with Lymphatic fluid due to the babies lymphnodes not working properly. Our ultrasound revealed a moderate sized cyst involving the head, neck and back. You can see the cyst on the ultrasound picture. We were immedialty sent to a Perinatoligist Group at the Women's and Babie's. Upon arrival, another ultrasound was conducted, and Maternal-Fetal Medicine reconfirmed the diagnosis. We were told that our baby has about a 70% chance of having a Chromosome abnormality and a possible chance of a heart defect. Our Doctor informed us that in very rare instances, about 3-5% , a Hygroma can shrink, and sometimes disapear. An amniocentisis was recommended to diagnose any Chromosome related issues, and serial ultrasounds to monitor baby throughout pregnancy. We were asked if we wanted to continue with the pregnancy, and we shuttered at the very thought of ever taking away such a precious life. Confused and shocked we took what little information we had, and went home to tell our family of the news.
The next several days were a whirlwind, and I can't say for myself that my faith didn't waiver. My very thought and fear was "How will I ever have the strength to move forward?" (this question was later answered)....We were bombarded with caring friends, family, and aquantences asking "how can we help?" I was too tired and too heart-stricken to even answer them, or face them. You just don't ever forsee something like this happening to you. I found myself in my devotions not knowing what to pray for or ask God for...."a small chromosome disorder, a miscarriage, health, " I knew in my heart I wanted a beautiful, healthy baby, but it seemed like that option was too far-fetched. A very-dear friend of mine, soon sent me a letter, that I feel was the begining of an amazing transormation in our baby's fight. She told me that I need to begin praying for just what our heart's desired, a perfect, healthy, baby. Which would require a "super-natutral miracle" From our Lord above. "YES!" I thought immedialty, of course! Our God is a God of supernautral miracles, and how easily we forget this. i turned to the Bible and began reading of the healing miracles that Jesus performed during his life. A blind man, a leper, a woman raised from the dead, a demon cast away.....all just a few miracles, given to those who asked. Jesus told us on the sermon on the mount, "Ask and it will be given to you; seek and you will find: Knock and the door will be opened to you" -(Matt.6:7-8) Our hearts immedialty knew that if it is in God's will, this baby can and will be healed. We fell at peace about four weeks later, and realized that whatever happend, God had a plan, and he will give us the Grace we need to move forward. That's not saying there weren't hard days, sad days, when we just said "why?" but we felt a sense of hope.
In February a healing service was done in our home, with our fam of "four" and some fellow believers who felt led to come and call on the Lord in our home. We sang, prayed and they asked the Lord to please Heal our baby if it is in his will, and make him healthy, remove the cyst, and let there be no Chromosome problems. It was an amazing experience, I cannot wait to share with our little one someday. Our friends left and the following morning our hearts overflowed with more Hope and affirmation that we need to keep praying and asking....and so we did.....
In the meantime, during some routine bloodwork, an antibody showed up in my bloodstream, causing some concern on what blood type the baby was carrying. Evidentally, during my previous c-section, some of drew's blood and mine mixed in my blood stream, casuing me to build up an antibody to a protein in his blood type. If Baby Risser also inherited this blood type (from eric) My blood cells could possibly start to attack the babie's giving him a disease call HDN (hemolytic disease of the newborn) which can be very risky. My amnio results would also reveal if the babe had my blood type or eric's.
At the end of February,after much waiting and patience, our amnio results came back Negative for any chromosome abnormalites, and we immedialty praised God for his good works! We were told our baby is a boy! And we began once again embracing a "normal" pregnancy" We were told the Hygroma is still present, and needed to be monitored every 4 weeks. The amniotic fluid also revealed that the baby was carrying my blood type! Eliminating completely the possiblilty of the baby getting a blood disorder inutero. We praised God once again....!!!! Amen! We kept everyone posted and continued to ask for prayers and healing.
On April 2, 2008 Eric and I skipped through the parking lot at Women's and Babies after learning the Hygroma has shrunk and was almost visibly gone. Our baby was fighting, and looked vibrant and strong, and we feel we owe it all to our powerful Savior.
As of now our baby is out of the "High risk" cat. and needs to continue to be monitored for growth and heart-realted birth defects. We will be having a fetal echo-cardio-gram on April 30 and again in 8 weeks after that, our Dr. says as of now our baby's heart looks healthy and he can rule out about 50% of any defects, however we will continue to keep monitoring.
We believe totally that our baby is happy, healthy, and persistent like his big bro! He also is going to be a walking testimant of the Power of God. Our testimony as a couple and as parents is begining to take shape, and every day we realize the ways God is showing us things we may have never seen otherwise, hence, the journal. I hope here to make some sense of all the amazing things going through my head right now! We both agree that an experience like this can change a marriage for better or worse. This has strengthened us in a way we never realized, drawing us closer than before. I have to say, some days, it's easier to just say " I want to be alone" but in the end you need to turn to each other, not pull apart and use your partner as a partner in God. You truly realize, God has partnered me with just the person I am to be with. Faith, Grace, and such a depth of thankfulness for the blessings of family, our son, and people who care so much for us. These are just a few, i truly beleive God is doing some continuing work here, in that others will hear this story and be drawn to seeking him out and learning that our God really is STILL a God of Supernatural miracles, our son is living proof.

38 comments:

Heather said...

Praise the Lord! Our God is good. I will never tire of hearing this awesome testimony. We truly serve a LIVING and active God, one who is wants to answer the prayers of His children as they cry out in Jesus's name. It's so exciting to see the fire that has been lit under you and Eric's faith in all of this, and in your relationship with Jesus and in each other. We can't say enough how happy we are for your family.

We love you guys.
- Mitch, Heather, and Kaylan

Lauren said...

Yea, for baby Risser and yea for miracles in the womb. We love you and continue to cry out for the continued health of your little one. We are adding your blog to ours so that searching parents, and friends and family can be encouraged by your story too! How awesome is our GOD?

Anonymous said...

Our Joseph Liam-Faith was diagnosed with cystic hygroma in utero and was given a very grim prognosis. He is now almost 4.5 years old and the the light of our lives...the LORD IS GOOD! *hygroma ressolved, very healty and happy!

Anonymous said...

I was just looking around online about cystic hygromas because our 18month old little girl has just been diagnosed. After reading story after story I was beginning to think that this was going to be more than I could handle. We firmly believe that the Lord and prayer are going to lead us in making the right decision regarding Ashlynn's treatment. Thank you for the reminder that God will heal our beautiful little girl and be with us every step of the way! God Bless!!!

Xia and Isa said...

What a wonderfully moving story. God is so good, thanks for sharing the testimony!
Stephanie (Laura's coworker and Mommy to Xia and Isa)

Anonymous said...

I AM 26 YEARS OLD AND 19 WEEKS PREGNANT.I WAS JUST TOLD THAT MY BABY HAS A LARGE CYTIC HYGROMA ON THE BACK OF HER NECK,LOW AMNIOTIC FLUID AND FLUID AROUND HER COME HEART,LUNGS AND IN HER STOMACH.I WENT BACK YESTERDAY TO TAKE A AMNIO TEST AND IM JUST GOING TO WAIT FOR THE RESULTS TO COME BACK NEXT WEEK. THEY SAY I HAVE 0% CHANCE THAT MY BABY IS GOING TO SURVIVE THROUGH THIS. I WAS GIVEN ONLY 2 OPTIONS..TO ABORT IT OR LET NATURE TAKE ITS COURSE AND WHEN SHE DIES I WILL HAVE TO DELIVER HER.THIS IS MY FIRST PREGNANCY AND THIS IS THE HARDEST THING I HAVE "EVER" EXPERIENCED. I PRAY TO GOD THAT MY DAUGHTER WILL SURVIVE AND BE HEALTHY. I DONT KNOW WHAT I WILL DO IF I LOSE MY BABY! I KEEP PRAYING BUT IT JSUT SEEMS LIKE NONE OF THE DORCTORS OR SPECIALIST GIVE ME ANY KIND OF HOPE!!

Anonymous said...

Thank you so much for this story of hope. Our baby has been diagnosed with cystic hygroma as well and we wait to see the outcome for our little one. We know that our God is good and is working even now in this situation. He's our ever present help in times of trouble!

Michelle said...

Everyone must keep hope and Pray every single day. My daughter was diagnosed with a cystic hygroma measuring 17mm, her left kidney filled with too much fluid, and a 2 blood vessel cord. Doctors terrified us: told us she's either have a syndrome for sure either turners or down, or we could terminate pregnancy. Unbelievable! I had the amnio done next day and waited 2 miserable weeks for the results to come back normal. At the 7mth of pregnancy everything except for 2 blood vessel had resolved on its own. However the doctor then brought up something ridiculous; he said he'd notice her ears were low-set, which to him meant see could possibly have some type of syndrome that the amnio doesnt test for. MY EARS ARE LOW SET. Couldnt that just be genetic? I couldn't believe that with good news he'd try to still worry us with something so dumb. My baby was born April 2nd, she was a healthy beauty weighing 8lbs 9oz. 20 1/2 inches long. I love her so much and I am so glad my husnad and I did not listen to docs to terminate the pregnancy. We prayed everyday and night and in the end God gave us the best little miracle ever. I thank Him. Sometimes I even think He was testing us to see where are hearts were; to see if we'd keep her even after so much bad news. To everyone suffering because of terrible news or possible health problems with your little ones, please have hope and believe that our God does everything for a reason and loves us all so very much. Only He knows why we sometimes must go through such things in life.

Anonymous said...

HI

Such a great onderful moving story, I was googling on 'CH' since today i went for 12 week's scan, & told that my baby might have ch measuring 5.2, yuor story gave me a great hope & most importantaly " Believe in GOD ", Thanks for sharing . Just a question does your son has any loose skin after he was born

Thank you so much

G

Jaime said...

I am 17 weeks along and just had a level 2 utrasound today the Dr. told us that our baby has a Cystic Hygroma. I am just heart broken, I feel god is punishing me for something I did. Maybe me and the babys father are not married yet. I just really dont know what to do. I never knew you could be so attached to someone you hadnt even held yet. I have prayed to god that everything will be ok and our baby will make through the next few months. I know with god all things are possible and everything happens for a reason. but its still very very hard to deal with im only 22 years old and the father is only 25. I would love to get some more info from you and what all happened and how your son is doing now. my email is jaime_elizabeth@ymail.com Thank you and May god contiune to bless you and your family!
-Jaime

Louise said...

Jaime know this, The devil is a liar! Please do not EVER doubt God's love for us. He created us and has nothing but pure love for his children. We must go through life's tough battles always knowing that He is in control and will work things out for our good, not to forsake us. God will never punish us by harming what we love (our children). I am currently 26 weeks pregnant and my daughter, Leslie, is suffering from IUGR, weighing less than 12 ounces. Three years ago I gave birth to our stillborn angel, Bethany, with similar issues. However, I'm praying for my miracle, regardless of the doctor's grim prognosis. Surround yourself with believers and those who love you and the Lord. No matter what happens, love will pull you through.

Anonymous said...

HAVE FAITH! Please, everyone who reads these boards, pray on your knees with an open heart.My son was diagnosed at 9 weeks w/cystic hygroma. The specialist told us it was grim, and my son would probably not make it to term, or if he did, he would be a vegetable. The Dr. ENCOURAGED me every week to terminate my son until month 6. My son is PERFECT! Born 5/29/09 at 5:29pm. 10 lbs!
kblondie1@hotmail.com

Jennifer said...

Thank you for sharing your amazing story. It has given me so much more strength and faith in God. I am 23 and this is my first pregancy. I am now 17 weeks and I had my first ultrasound at 15 weeks. I was so excited to hear my baby's heart beat for the first time. Then a week later my doc. called me and said the ultrasound spoted a large cystic hygroma. Today is actually my first appointment since I found out. Of course I am scared but I know God has a plan for me and my baby and I trust in him completely. All I can do is keep praying and with my family's love, support, and prayers and with the prayers of others I have complete faith in God.

Anonymous said...

Thank you for your story . I am 23 weeks pregnant and my baby has Cystic Hygroma and untill today I didn't think it was serious. But today our doctor said that it's gotten worst and that the baby will not survive. I am very confused and scared , My 8 year old daughter is waiting for her baby brother and writes him letters , I just don't know how to tell her if the baby dies , I pray every day for his health in my own way , may be I am not doing it right .

Anonymous said...

Our little baby was also diagnosed with CH at the 12week sonar measuring 4.4mm. We were devastated since its my first pregnancy and we were so excited about being pregnant.
We went for a CVS 2 days later and had to wait 3 weeks for the results.

The Lord really tested our faith, we had so many friends and family pray for us and that was the only thing that kept me going and positive.
Our CVS came back normal and we found out we are having a baby GIRL.
At the 16 week sonar she looked perfect and the hygroma has shrunk to 2.5mm.

We decided to call her Mikayla, meaning "the one who is like God", since she is our little miracle straight from heaven and only through God's grace.
We are having our level II sonar in 2 days but I have absolute peace in my heart that God has healed our baby Mikayla and that she is going to be perfect!

I think we all should feeled blessed that God chose us so that He can reveal His ways through our lives and that people around us can realise that God REALLY still does miracles everyday.

We praise God for being so good to us and I will pray for every parent and baby having to go through this difficult diagnoses and fear!

Keep rejoicing in the Lord for He is so Good to us!

Love,

Minnette (South-Africa)

AccessDNA said...

Thanks for this useful post. Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/Cystic_Hygroma/111. Thanks, AccessDNA

Andrea said...

We are in the diagnoses stage with our 10 month old daughter of what is either a cavernous hemangioma or a cystic hygroma. I was googling information and came across your blog. It's inspiring, and gives hope where sometimes the doctors can't. Thank you SOOOO much for sharing!

evelyn said...

Hello, just wanted to let you know that your website gave me alot of hope when I was pregnant with our baby girl Lourdes. She was diagnosed with a cystic hygroma (7.5mm in size) at 12 weeks. It didn't look too good for us. I had an amnio done at 15 weeks and confirmed that baby has Trisomy 21. Despite the odds, we chose to continue the pregnancy and on December 21, 2010, I delivered a healthy 6.3 lb baby girl! She indeed has down syndrome but we wouldn't change a thing about her. She's a blessing from above and love her unconditionally. She continues to amaze her doctors, she does not have any major heart problems, just a tiny hole in her heart that is continually being monitored. (she had two tiny holes, but one already closed) I decided to write my experience to let anyone that had the same experience as us know that there is hope. We prayed every day and did not lose hope. If anyone wants to ask questions or find out more about our experience, feel free to email me at evelyn617@yahoo.com Our baby reminds us that with faith, hope and prayers, anything is possible!

Anonymous said...

We can't never fight the will of God. I just got the news on July 12th that my baby has hygroma/hydrops. I'm 16 wks preggo & it took me by surprise. I have a healthy 4yr old son & I don't understand why this one is going thru this. Only option Dr gave me was to terminate but no way I believe that if the baby's faith is to be w/ God then its his choice what happens. My amnio was done on the 13th 2010, so now I'm waiting hoping & praying its not chromo problems. I'm so glad that u had such a good outcome. I will hold on the my faith & hope that mine will have the same outcome, if not I can only thanx God 4 my son & the beautiful life he has giving me. May God continue blessing your family!!

Anonymous said...

Thank you for sharing your story. I found out yesterday at a 12 week scan my baby has a 9mm cystic hygroma and fluid around the heart and lungs. I was n a state of shock. This was not the news I was expecting. I have two other children. My husband and I were so excited about this "surprise" third pregnancy, and I doing my best to remain calm. I am having a cvs test today, I have been praying since I found out this information, of course after crying uncontrollably. I feel as if this is a test of my faith. Your stories and your prayers have given me hope. Everyone was so negative at the hospital about my results. I am so glad that you have shared your story. Thank you and God bless you and your miracle children.

AmyGarrett said...

Hi, my name is Amy, I am 10 1/2 weeks pregnant. We just found out our baby has a 4mm cystic hygroma on its head, neck, and back. We go back in two weeks for CVS testing. I have researched and researched this condition(I am actually a new nurse) and I am scared to death. I wanted you to know your story is so inspiring to me. Everytime I get that nervous, short of breath, nauseated feeling inside from being scared I come to your page and read your story. God is so good!(and he is whats getting my husband and I through right now, and I hope that he will also heal my baby.

nikkid said...

I am going through this right now. And my faith is so broken. I am waiting on my results and it is the worst torture ever! Your blog is very encouraging. THANKS for sharing

Janet said...

Our baby was diagnosed with cystic hygroma 2 weeks ago (I am 13 weeks along now). Our baby has something wrong with the spine and some of the digestive organs are on the outside of our baby's tummy. I know God can heal our baby and I also know that it can be His will to have our baby join Him in Heaven. I am just praying for a strong faith to deal with whatever God gives me. So many people are praying for this baby that I know whatever happens is the will of God. I am praying for a miracle though!

Heather Tolbert said...

My husband and I were suggested to terminate our 5th pregnancy because our baby had a cystic hygroma and a single vein umbilical cord. She was born July 23rd 2010. She is chromosone normal, has 12 teeth, walks, talks and is very developmentally appropriate. She is healthy and normal and going to impact this world for Christ. I love her little webbed neck and it will be a part of her testimony and how her mother chose life.

Brandy said...

My name is Brandy and I am 16 wks pregnant with 4th child a baby girl. I had my Ultrasound and docs diagnosed my baby with cystic hydroma w/ fetal hydrops in the stomach and chest. I'm having my amniocentesis in 5 hours. The docs told me to terminate my baby or let nature take its course. I'm very distraught because up until yesterday my baby was fine. I don't know what to do and I can't sleep at all. All I do is cry. Please pray for me and my family. Maybe GOD IS punishing me for something idk. Email Brandy21106@Gmail.com

Anonymous said...

My husband and I just had an ultrasound that scared even my doctor. I'm 19 weeks pregnant and there is a large cystic hygroma and hydrops in the stomach. I'm supposed to go in to see a fetal medicine doctor on Wednesday but I feel in shambles. We had been dealing with a previous miscarriage and 12 years of infertility. All we want is a healthy girl. If you have any positive stories of hope please email at dinagarcia_70@hotmail.com

Anonymous said...

Hello.My name is Jessica.This is my second pregancy.And at 13 weeks I was told the baby had fluid on the back on his neck and wasn't told for sure but the doc said it could be cystic hygroma.I started balling.he was trying to reasure me and let me know not to worry too much till I see a specialist.I can't go see the specialist till 16 weeks.Im having to wait 3 weeks.Which will feel like a lifetime.I cant help but to pray every chance i get.I know God works miracles.I am just so terrified.I want this baby to be okay.I remember the doc telling me if the news comes back bad we will half to decide what i want to do.As in continue with this pregnancy or not.I believe this is the hardest thing i have ever been through and i have been through alot in my life.I want this baby to live and be healthy.I will continue to pray for Gods will.I will continue to turn to God because he is the only one who can fix this.I just pray these results come back okay.And maybe in November my baby will be a miracle that I to can share with others.Thank you for your encouraging story.Gives me hope.God bless!

Anonymous said...

Your story sounds just like mine. I'm so devastated considering my husband and I tried 3 years and finally got pregnant with ivf. Every time we see our genetic councillor she gives us no hope like you. We have no chromosome disorders confirmed only thing they keep saying is your baby is sick and not going to make it.

Linde said...

I'm a little late to the party, but wanted to share my story. I am 13 weeks pregnant with our first child. (I've had 2 miscarriages previously.) At 10 weeks, we were given the grave news that a septated cystic hygroma was found. We were devastated to say the least. I found your website, and have read it multiple times, because it gave me hope. My faith has been waning in recent years, but I prayed, and prayed and prayed. I prayed that even if our baby wasn't "perfect", that we would be able to bring him home, and love him and make him comfortable, because he's ours! (Despite the Dr's mentioning termination.)
So, I had my 12 week US last week, and the hygroma was GONE!! The Dr actually said "This is amazing." I call it a miracle! Our tests came back negative for chromosomal abnormalities as well. I praise God, because only he could give us such a blessing. I continue to pray that there are no heart defects, but I know it MY heart that God is Good. :) Thank you for sharing. And for those who may read this with heavy hearts, Doctors don't know everything. There is always hope!

terrence williams said...

Hey my name is terrence williams me and my girlfriend are going thru the same problems the doctor told us they saw fluid like sac surrounding the neck and head in our 12 weeks ultrasound just praying for the best everyday we leave it up to the lord to bless us and with hope and a miracle. After doing some research we was told our baby have cystic hygroma and there a slim chance for survival IM just praying that this fluid like sac goes away and to be able to have a healthy boy or girl I just need positive talk and motivations and your story has giving us hope thank you and pray for us

Anonymous said...

At 12 weeks our baby was diagnosed with cystic hygroma. The Dr. told us the baby was very sick and the best option was to abort. I went to three different doctors and all gave the same diagnoses. I decided to take the Dr.'s advice and aborted the baby. Now I can't sleep, eat, I'm in a totally depression. I'm scared this will happen again. I don't understand why this happen. Please keep us in your prayers. The pain is unbearable. I am having a hard time getting through this lose.

Anonymous said...

Omg, in February during the first ultrasound we were so happy to see our first baby - its hands moving, its eyes looking to different directions! It was amazing. Until the nurse stopped, rushed away and came in with a doctor. The doctor made diagnosis: Cystic hygroma. We were immediately directed to the genetics department. The genetics professional told us that our chances are low: 60% of chromosomal abnormalities, 20% of genetic problem, 15% of heart disease, 5% - hygroma would shrink. We were also advised to do CVS the same day. We followed this direction and had to wait 10 days!!! for the results from CVS to come back: NO CHROMOSOMAL ABNORMALITIES! Meanwhile, I was going to church, praying, and going back on the believer's path. It's still hard to make my husband a believer. He went to Catholic school, all his family is very religious, but after the divorce of his parents, he was deeply hurt and decided to become an atheist. I ask him to pray with me, and he does support me, but says he does not believe in God. I feel like if we both prayed, perhaps the hygroma could shrink. The doctors also say that there might be a need for operation after a baby's born - that scares me! How can a woman be pregnant 9-months, all people will congratulate you, and all you will think about is - God, please, I would do anything for my child to be healthy with or without operation. The worst thing is hang in there in limbo!!! And that's how I feel right now. All I can do is pray to God Almighty. Hopefully, my husband will pray with me, too. He is a good and supportive man.
I am sending you my blessings. Thanks so much for this great post!!! Let you and your family be healthy and happy. God be with us. Love,
Anna

Anonymous said...

I am,10 weeks and 4 days along right now my baby was diagnosed with cystic hygroma and hydrops..I told them I wasn't aborting this baby..I carry til things happen if anything I have so much faith my baby will be strong and healthy and things will resolve on there own before may...please keep me in your thoughts and prayers my name is april partin thanks so much

Gina Olsen said...

What was your outcomes? This is me right now. I'm 19 weeks and just had my ultrasound where they said your baby has hygroma on the back of its neck. I go to specialist tomorrow, but my Dr said baby's heartbeat will probably just stop beating :( it's Sunday and I'm on my way to church! Would love to hear your outcomes either way and I know these might be old posts.

Ashley said...

I am 22yrs old and this is my 4th pregnancy. I have had 3 miscarriage's prior , we just found out that my baby is going through exactly what your little fighter was going through. Your story changes my view on life and all I do is pray for a healthy and happy baby. I couldn't be more happy for you and your family. Thank you for sharing your incredible story.

Isabelle Takyi said...

Hello my name is Isabelle Takyi I am 15 years old and i was diagnosed with Cystic Hygroma from birth. It is a very rare condition and can be quite scary in the beginning.we are as normal as any other human being, I can do everything from eating, talking, swimming and attending regular school. Next year I will hopefully write my GCSES. I used to have a trachea in my throat to help me breath but at the age of 11 it was removed. I have had a total of 5 surgeries 3 trying to remove the cysts in my cheeks, a tongue reduction and the closure of my trachea. I want to tell all parents with children like me don't loose hope we are nothing to worry about we may require some extra help and take longer to do simple tasks but when we master them we never forget. God is very good and I can't go a day without thanking him for all he's done for me, he can do the same for your child too. I will be happy to answer any questions concerning my journey and what it is like. You may contact me at : Izzy.takyi@hotmail.com or Isabelle.takyi@gmail.com. God bless you and be with you.
Isabelle.

Unknown said...

Don't lose hope. I was told my baby had cystic hyroma of 30mm and was told the baby most likely had a heart problem and had fluid in his abdomen. I cried and was depressed, after getting a poor prognosis. We prayed for a miracle. Two days later, we went to get the cvs procedure done. When they were checking again to verify what was seen two days ago, our prayers were answered. The cystic hyroma went from 30 mm to 2.5 mm, but the fluid in the abdomen is still there. It's truly a miracle of God. I don't think it was a mistake, I do believe it was God who took us under his loving arms and had mercy on us. Please don't give up, do everything you can it's possible. There is always faith and hope.

Hope468 said...

I’m 12.5 weeks pregnant with my second child. I have an 18 month old son. My husband and I just went to the 12 week ultrasound a few days ago and saw our (very active) beautiful bundle of joy! We were both filled with love Then the doctor came in and shared the news that the baby had a cystic hygroma. We were both numb. He shared the probability of long term prognosis for the baby. Then gave us a few options. We opted to go with the nipt test and go from there. I am so scared right now and pray everyday that this baby is healthy and happy. The thought of loosing them is terrifying. After hearing all of your positive stories it helps me to continue to hold onto hope. I am yearning for a prayer group for this little one My family lost my brother (32) in January to cancer so I don’t want to share any more painful worrisome news until I know what we are actual facing (whether chromosome or not). But I ask that if you are reading this post please pray for my baby’s health and survival. Thank you